查理不是哑巴，但说话只是他的交流方式之一，并且很可能算不上主要方式。同样重要的是他的肢体语言，面部表情，语音语调，特定词汇，以及说、唱时使用的特殊的曲调。围着桌子吃晚饭时，我们不会慷慨激昂地谈论政治，但我能很好地理解和领会查理想告诉我什么，有时还能猜到他正在想什么。（正如有些人能猜到他人的想法一样）。
当我读到Carly Fleischman的故事时，我在沉思查理用他的语言和其他方式能告诉我们多少东西呢。Carly Fleischman是个13岁的加拿大女孩，患有孤僻症，靠在手提电脑上敲打文字与外界沟通。（这里）摘录一段，讲述Carly如何成长为Carly Weeks记者：
我是一个患有孤僻症的女孩，学会拼写后，现在能够告诉人们我的想法。这不像给新奥尔良洲重建一千座房屋，或者给饥饿的人食物。我认为我能说的仅是，不放弃内心的声音，你就能像我一样重获新生。
从（自闭症患者）Tito Rajarshi Mukhopadhyay和DJ Savarese的文字中我学到很多。我们试着教查理打字，目前他还什么兴趣（要知道他去年才学会了怎么用鼠标），过不了多久情况会好转的。与查理一起的日子中我学到的重要的一课便是用他最乐意接受的方式与他沟通。甚至当他说自己很兴奋，饥饿，疲劳或者快乐的时候，我们会小心地挑出"wo”这个词。
显然，这是老生常谈，但查理提醒我语言有其局限性，你可以穷尽所有的单词却表达不出任何道理，无法将自己的观点传递给别人。不管是什么方式、种类以及用途的声音都有枯竭的时候。
Maybe There’s More to It Than Talk
Just a few days ago I noted to Jim that having a child who, like Charlie, does not talk much is entirely different from what I would have imagined things to be like. Had someone told me ten years ago, twenty years ago, that I’d be the mother of a child like Charlie, I think I would have just not have known what to think. How, I would have thought, can anyone be without speech, language, talking, the ability to read and write and express thoughts and hopes and wants and wishes in words?
Charlie is not non-verbal, but talking is only one way that he communicates, and probably not the main way for him. Just as crucial are his body language, his facial expressions, the tone and pitch of his voice, the particular phrases and sorts of melodies that he says/sings/uses. We don’t have rousing discussions of politics ’round the dinner table but I have a quite good sense and understanding of what Charlie is telling me and, at times, what he might be thinking (as much as anyone can know what another person is thinking).
I’ve been reflecting how much Charlie is able to tell us—through the language that he has, through his other ways and means—in reading about Carly Fleischman, the 13-year-old Canadian girl who has autism, and who communicates by writing on her laptop; one excerpt, from an exchange between Carly and reporter Carly Weeks:
I am a girl with autism that learned how to spell and is now able to tell people what I think Its not like I built a thousand houses in new Orleans or found a way for people who don’t have food get food I think the only thing I can say is don’t give up your inner voice will find its way out Mine did
I’ve learned a lot from reading what Tito Rajarshi Mukhopadhyay and DJ Savarese have written. We’ve tried to teach Charlie to type; so far, he has not been interested—-keeping in mind that Charlie just learned how to use the computer mouse last year; all in good time. The great lesson of life with Charlie has been to learn to communicate with him in the ways that he has more ready access to, even as we seek, gently, to give him words wo that he might tell us he’s excited or hungry, tired, happy.
Sure it’s a cliché, but Charlie reminds me that language has its limits, that you can say all the words in the world and still not make any sense, not get your point across. The voice — in whatever way, shape, or for — will out.
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