天津首位公开身份艾滋病感染者马治发受邀赴清华研讨 艾滋病病友呼吁:天津增设专门医院 缓解看病难


天津首位公开身份艾滋病感染者马治发受邀赴清华研讨 艾滋病病友呼吁:天津增设专门医院 缓解看病难

 
 
 
 
 
天津首位公开身份艾滋病感染者马治发受邀赴清华研讨
 
 
图示∶2010年12月即将出版的《中国特色医疗金鉴》登载的刘君主任及其机构 
 
 

慢性艾滋病早期中医药治疗保障生命论证

 
2010-11-26 17:19:21
    简要内容:马治发主动走到媒体前,公开自己是艾滋病感染者的身份,希望得到社会的包容。由此,马治发引起了清华大学法学院卫生法研究中心、清华大学艾滋病综合研究中心等权威专家学者的关注,本周日(28日),他将被邀走进清华大学,《每日新报》的报道也将作为案例在清华大学研讨会上进行讨论。


“支持马治发”

  人民网·天津视窗11月26日电:马治发主动走到媒体前,公开自己是艾滋病感染者的身份,希望得到社会的包容。由此,马治发引起了清华大学法学院卫生法研究中心、清华大学艾滋病综合研究中心等权威专家学者的关注,本周日(28日),他将被邀走进清华大学,《每日新报》的报道也将作为案例在清华大学研讨会上进行讨论。

  马治发的遭遇引发了社会对艾滋病感染者现状的思考,其系列报道引起关注,一时之间被新华网、网易、人民网、中国日报等媒体纷纷转载。此外,他的遭遇也得到专家的关注,国家艾滋病防治领域专家、卫生部疾病预防控制专家委员会艾滋病性病分委会委员张北川和中国艾滋病防治协会法律政策工作委员会主任、清华大学李楯教授都对马治发主动曝光自己的行为发表过观点。

  本周日,清华大学将举行卫生法研讨会,会议将集中讨论基于艾滋病的歧视和相关法律问题,马治发将被邀请作为感染者代表讲述他的体会和感受,专家学者也会就他的经历共同探讨,尽可能帮助他。研讨会上,清华大学法学院、清华大学艾滋病综合研究中心、中国社会科学院、中共中央党校、联合国艾滋病规划属、盖茨基金会北京办事处等高等院校、机构的专家学者将一起讨论艾滋病感染者的生存权利。

  “马治发的举动很勇敢,感染者也是社会的一分子,应该享受本属于他们的权利。”研讨会主办方——清华大学的工作人员表示。

  听说自己被邀请去参加清华大学的研讨会,马治发有些紧张,“没想到权威学者会关注我。”马治发说,虽然目前还没有得到工作,但他还在继续观望。截至记者结稿时,马治发正在接受中央电视台采访,他说,他不仅代表自己,还要为所有艾滋病感染者维护权益,期待社会给予他们包容。

  对话濮存昕:

  了解到马治发勇敢站到媒体前公开自己是感染者身份的举动,正在外地参加活动的预防艾滋病宣传大使濮存昕特意给记者打来电话,“我支持小马,也支持《每日新报》。”

  濮存昕表示,作为预防艾滋病宣传大使,他能理解感染者生存的无奈,“马治发曾多次被辞退的遭遇希望能引起社会的讨论,让社会了解应怎样对待艾滋病感染者。近些年,包括我在内的很多人都作出了努力。”濮存昕说。

  对于马治发的遭遇,濮存昕表示理解,“小马的遭遇在感染者中普遍存在,近十年,通过专家、媒体、形象大使等共同努力,对艾滋病知识的宣传教育有一定成果,但社会对艾滋病的歧视态度仍没有根本好转。”他也对《每日新报》的报道给予支持,“媒体能利用空间,讲述感染者的处境,引发社会探讨,非常好。”

  濮存昕建议马治发参加自强自立的艾滋病感染者组织,也希望他能用爱心、同情心去帮助其他感染者,并且表示,如近期回北京,他愿意和马治发见面,尽可能帮助他。(记者 劳韵霏)

艾滋病病友呼吁:天津增设专门医院 缓解看病难

 

  连日来,本报关注艾滋病的系列报道引起强烈反响,无论是志愿者小新,还是感染者老郑,都给人们留下了深刻的印象。昨天,天津海河之星感染者工作组负责人李虎给本报打来电话,感谢本报对宣传艾滋病常识、提醒社会重视所做的工作。在第23个世界艾滋病日来临之际,李虎代表天津的艾滋病人和感染者发出呼吁,建议在天津多增加几家能够接收艾滋病人或艾滋病感染者就医的医院,以解决艾滋病人和感染者就医难的问题。

  现状

  痔疮、阑尾炎、胆结石……传染病医院治不了

  其他医院发现HIV阳性一律转送传染病医院

  隐瞒病情到私人医院就医

  现状一  患者多医院少

  李虎介绍,目前,天津传染病医院是天津地区艾滋病感染者和患者唯一指定就医单位。当初,这里没有艾滋病门诊,治疗都在肝病门诊进行,后来,在医院领导的高度重视下,开设了艾滋专科门诊,但是从天津的艾滋病人及感染者人数来看,仍然无法满足他们的就医需求。

  “天津到北京坐城际特快只需30分钟。北京有佑安医院、地坛医院两家专科医院,还有解放军302医院、协和医院两家综合医院能够接收艾滋病人及艾滋病感染者就医,加之他们对患者细心关爱,由此造成很多天津艾滋病患者舍近求远到北京就医。”

  现状二  得病没地方看

  “在天津,艾滋病人或感染者一怕就业歧视,二怕得病,因为得了病没地方治。”李虎说,天津的其他综合医院不接受HIV阳性患者治疗非HIV/AIDS病症,而传染病医院对其他疾病又不具备必要的手术和治疗手段。

  “国家明令要求医院不能拒绝、推诿为艾滋病感染者或病人治疗、手术。而现实中,本市各家医院一旦检查发现患者HIV阳性,便一律转送传染病医院。传染病医院是肝病专科医院,根本无法治疗艾滋病感染者或病人患有其他需要手术治疗的疾病。”

  “如简单的痔疮、急性阑尾炎,复杂的腹腔积水、胆结石、胆囊肿、腰椎间盘突出等手术,传染病医院都不能做,艾滋病感染者或患者常常隐瞒病情到私人医院就医,”李虎说:“这种现状既不利于艾滋病感染者或病人的医治,更不利于艾滋病的防控。”

  声音  增一所三甲医院收治艾滋病人

  基于上述现状,天津的艾滋病友发出呼吁,希望本市能增加至少一所综合性三甲医院接收HIV/AIDS患者,解决感染者或病人手术困难以及其他病症治疗的问题。同时,希望天津医生能与国内外艾滋病专家在临床治疗上加强交流合作。“多年来,在我们与国内外艾滋病专家和国际基金组织支持的‘无国界医生’的合作中,了解到他们也有这种愿望,希望定期或不定期到天津作临床经验交流,提高天津医生的专业素质和医疗水平。”李虎说。

  艾滋病友声音

  小江(化名):去年年底做痔疮手术得知还感染了肛内尖锐湿疣,当时是痔疮与尖锐湿疣一起手术,我隐瞒了艾滋病病情到一家医院求医,那家医院的医生说不能一下子全部去除,要留一点点,不然肛周恢复不好,需要过两个月再做一次。因为年初复查CD4(人体免疫细胞数值)又下降了,感觉有可能耐药,就想还是到专业指定医院看看。春节前到传染病医院,安排我在大年二十八住院,但传染病医院没有肛内手术条件,直到现在也没解决。

  阿传(化名):我去年咳嗽、胸闷、总发烧,在社区医院打几天针就好,停几天就烧。到传染病医院检查,医生说没什么问题,可能就是感冒。后来海河之星工作组建议我去肺科医院做了痰培植,检查出来是肺炎,及时治疗后没有复发。今年过了春节我一直感觉不舒服,五六月份又是这种感觉,但没查出是什么问题。7月份到北京佑安医院看病,被诊断为卡氏囊虫肺炎(PCP),是艾滋病常见机会性感染,直接就把我留下住院了,如果不及时治疗会危及生命。

  天津市性病艾滋病防治协会会长  最好增加一两家专业医院

  天津市性病艾滋病防治协会会长郭则宇称,截至目前,天津累计筛查出艾滋病例1000多例,除去流动到外地的、已经去世的或者自行服药的感染者,正在治疗的有200多例,比起2004年的三四十例,有激增的趋势。除了在疾控中心取药、服药外,全市仅有传染病医院一家医院能接收艾滋病人,与需求不符。协会曾向有关部门提议,进一步扩大天津市传染病医院的艾滋病就医规模,改善就医环境;在条件允许的情况下,新增一至两家接收艾滋病人的综合性医院,满足艾滋病人的就医需求。

  市卫生局  增加医院不是件简单的事

  市卫生局的工作人员称,新增医院不是件简单的事,需要先有动议,然后由有关部门审核后立项,再行报批等一系列程序,“不是说说那么简单。”

  天津市传染病医院  风险大收入少没人愿意干

  传染病医院院长陆伟回应称,新增“艾滋”医院不是一家医院能决定的,应由卫生局统一协调。该院已于去年专辟一栋楼作为艾滋专科门诊。但是由于艾滋病有很多减免费用,艾滋专科门诊一直亏损,而且因为风险大、相对收入低,愿意从业的医护人员少,加大规模有困难。

  下一步,该院将再配两至三名专职医生,与艾滋公益组织建立互动,了解病友需求。陆伟希望病友呼吁政府加大投入,解决医院因资金短缺产生的困境。

  读报帮助

  海河之星感染者工作组是本市最早的一家艾滋病感染者关爱组织,也是天津地区艾滋病感染者自愿形成的非盈利性质的民间组织(NGO)。自2006年8月成立以来,为天津地区HIV/AIDS感染者提供了一系列心理支持、同伴教育以及必要的帮助,并协助天津疾控部门提高随访率,在减少二代传播工作中起到了积极作用。目前,该组织已有HIV/AIDS感染者会员240余人。时值第23个世界艾滋病日来临之际,海河之星感染者工作组愿意授权本报刊登联系方式,以为更多的艾滋病人及感染者无偿提供帮助。

  -联系方式

  热线:022-81731155

  13323458345

  邮箱:

  [email protected]

Tianjin, as the first openly HIV Qinghua Ma rule issued an invitation to discuss
 
 

2010-11-26 17:19:21
    
Brief content: horse hair and goes before the media governance, open their HIV status is, want social inclusion. As a result, horse hair treatment caused a Research Center of Tsinghua University School of Law, Health Law, Tsinghua University AIDS Research Center and other authoritative experts and scholars concerned, this Sunday (28), he will be invited into the Tsinghua University, "Meirixinbao "The report will also be seminars at Tsinghua University as a case discussion.



"Support the horse hair treatment"

Tianjin People's window on November 26 call: Ma administration made the media take the initiative to go before the public that he is HIV status and hope to gain social inclusion. As a result, horse hair treatment caused a Research Center of Tsinghua University School of Law, Health Law, Tsinghua University AIDS Research Center and other authoritative experts and scholars concerned, this Sunday (28), he will be invited into the Tsinghua University, "Meirixinbao "The report will also be seminars at Tsinghua University as a case discussion.

Ma made the experience led to treatment of HIV infection status of social thinking, and its series of reports raised concerns of a sudden be Xinhuanet, Netease, People's Daily, China Daily and other media have reproduced. In addition, his experience has also been the concern of experts, national experts in the field of AIDS prevention and control, disease prevention and control of the Ministry of Health Expert Committee on AIDS Sub-Committee members and Zhang Beichuan, China's AIDS Prevention Association Committee, director of legal policy, Tsinghua University, Professor Li Dun are all Ma made active exposure rule published view their own behavior.

Sunday, Tsinghua University Health Law Symposium will be held, the meeting will focus on discrimination based on AIDS and related legal issues, Malaysia will be invited as a rule issued on behalf of infected people to talk about his experience and feelings, experts also shared his experience on of as much as possible to help him. Seminar, Tsinghua University Law School, Tsinghua University AIDS Research Center, CASS, the Central Party School, the United Nations AIDS program is, the Gates Foundation, Beijing Office and other institutions of higher learning institutions, experts and scholars will discuss AIDS survival rights.

"Ma administration made the move very brave, infection is also member of society, should enjoy the right to belong to them." Seminar organizers - the staff of Tsinghua University said.

I heard that he was invited to attend the seminar, Tsinghua University, Ma administration made a little nervous, "did not think pundits are concerned about me." Horse hair treatment, said that although it has not been working, but he continues to wait and see. At press statement is issued, the horse is receiving government issued CCTV interview, he said, he represents not only myself but also for all people living with HIV to protect their interests and look forward to giving them social inclusion.

Pu Cunxin dialogue:

Ma made aware of courage to stand governing public that they are infected before the media the identity of the act, is to participate in the field of AIDS prevention activities, specifically Ambassador Pu Cunxin telephone call to reporters, "I support the Colts, and also supports" Meirixinbao "."

Pu Cunxin said that as AIDS ambassador, he can understand the helplessness of infected people live, "Ma has repeatedly dismissed government made the experience would like to draw the community to discuss, so that the community understand how to deal with AIDS. In recent years, including my including the efforts of many people. "Pu Cunxin said.

Ma made the experience for the rule, Pu Cunxin expressed understanding, "the colt's experience in the prevalence of infection in the past ten years, by experts, media, ambassadors and other joint efforts, publicity and education on AIDS knowledge, there are some results, but the community AIDS discriminatory attitudes still no fundamental improvement. "He also" Meirixinbao "to support the report," The media can take advantage of space, about the situation of HIV, triggering efforts to explore, very good. "

Pu Cunxin proposed to participate in horse hair strong and independent governance of AIDS organizations, but also hope that he can love and compassion to help other infected people, and said that if the recent back to Beijing, he is willing to meet with horse hair treatment, as much as possible to help him. (Xinhua Yun Fei Lo)

AIDS patients called for: the specialized hospital in Tianjin additional mitigation is difficult to see a doctor
2010-11-27 09:28 Source: Anhui, China Online
Close

Recent days, this series of reports concerned about AIDS caused a strong reaction, whether it is a small new volunteers, or infected Lao Zheng, gave the people left a deep impression. Yesterday, the star of the Haihe River in Tianjin working group of people infected with Li Hu called to the newspaper, thanks to this newspaper on the promotion of AIDS knowledge, the work done to remind the community to pay attention. In the first 23 World AIDS Day is approaching, Li Hu on behalf of infected persons and AIDS in Tianjin appeal, the proposed increase in Tianjin more than a few people with AIDS or AIDS to receive medical treatment in hospital infection to address AIDS and HIV the difficult problem of medical treatment.

Status
Hemorrhoids, appendicitis, gallstones infectious disease hospital can not cure ... ...

All other hospitals that transmit infectious disease hospital HIV-positive

Hiding of the disease to the private hospital

A few patients with multiple hospital status
Li Hu, at present, Tianjin Infectious Diseases Hospital in Tianjin in patients with AIDS and only designated medical units. At first, there is no out-patient AIDS treatment clinic in liver disease, and later in the hospital under the leadership attaches great importance to the creation of the HIV specialist out-patient, but from Tianjin, the number of AIDS and infection of view, still unable to meet their medical needs .

"Tianjin inter-city express to Beijing to take only 30 minutes. In Beijing You An Hospital, Ditan Hospital, two specialty hospitals, as well as PLA 302 Hospital, Union Hospital, General Hospital to receive both AIDS and HIV medical care, coupled with their attentive care to patients, which caused a lot of Tianjin to Beijing for medical treatment of AIDS patients far away. "

Second place did not look sick status
"In Tianjin, AIDS or infected with a fear of discrimination in employment, second, fear of disease, because the disease had no place to rule." Hu Li said the General Hospital of Tianjin and other HIV-positive patients do not accept non-HIV / AIDS disease, and infectious disease hospital for other diseases do not have the necessary surgery and treatment.

"State explicitly asked the hospital can not refuse, prevarication or patients for the treatment of HIV infection, surgery. But in reality, the city found that hospitals check patients when HIV-positive, it shall be transferred to infectious disease hospital. Infectious Diseases Hospital is a liver disease specialist hospitals, simply can not treat patients suffering from AIDS or other diseases that require surgery. "

"If the simple hemorrhoids, acute appendicitis, complicated abdominal effusion, gallstones, bile cyst, such as lumbar disc surgery, infectious disease hospitals do not do, HIV infection or patients often conceal the disease to the private hospital," Li Hu said: "This situation is not conducive to HIV infection or the patient's treatment, but not conducive to AIDS prevention and control."

Sound by a top three hospital treated people with AIDS
Based on the above situation, the Friends of AIDS in Tianjin appealed to the city to increase at least one of the top three hospitals to receive comprehensive HIV / AIDS patients, or patients infected with surgery to resolve difficulties and problems of treatment of other diseases. Meanwhile, we hope to work with domestic and foreign doctors in Tianjin in the clinical treatment of AIDS experts to strengthen exchanges and cooperation. "Over the years, our domestic and international AIDS experts and the International Fund to support the 'MSF' s cooperation, realize they have this desire to be regularly or irregularly to Tianjin exchange of clinical experience and improve the doctor Tianjin the level of professionalism and care. "Hu Li said.

Friends of sound AIDS
Little River (a pseudonym): Hemorrhoids surgery late last year to do that also infected with anal warts, hemorrhoids and genital warts was with the surgery, I hide the AIDS disease to a hospital for treatment, the doctor said the hospital could not look Remove all children, to stay a little bit, or perianal poor recovery, you need to have two months to do it again. For review in early CD4 (immune cell number) has dropped, feeling there may be resistance to the professional or designated hospital wanted to see. Before the Spring Festival to the infectious disease hospital in the Danian twenty-eight arranged for me to hospital, but no anal surgery infectious diseases hospital conditions, has so far not been resolved.

A Biography (a pseudonym): Last year, I cough, chest tightness, general fever, in a community hospital like needle hit a few days, stopping a few days to burn. To infectious diseases hospital, the doctor said no problem, may be cold. Star of the Haihe River Working Group was advised me to do a sputum cultivated Pulmonary Hospital, check out pneumonia, there is no recurrence after treatment in a timely manner. After the Spring Festival this year, I've been feeling uncomfortable, feeling again in May and June, but did not find out what it is. July to the Beijing You'an hospital, was diagnosed with Cartesian carinii pneumonia (PCP), is a common opportunistic infection of AIDS, I left the hospital took a direct, if not treated in time will be life-threatening.

Association of STD and AIDS Prevention, Tianjin best one or two specialty hospitals to increase
Association of STD and AIDS Prevention, Tianjin Guoze Yu said that as of now, Tianjin cumulative AIDS cases screened more than 1000 cases, remove the current to the field, has died, or self-medication of the infected persons are treated more than 200 cases, compared 2004 from three to four cases, there is surge in the trend. In addition to CDC and getting medicine, medication, the city's only infectious disease hospital, a hospital can receive AIDS, and demand does not match. Association had proposed that the relevant departments to further expand Tianjin Infectious Diseases Hospital for medical treatment of AIDS scale, improving the medical environment; in conditions permitting, add one to two people with AIDS to receive general hospital, to meet the medical needs of people with AIDS.

Municipal Health Bureau to increase the hospital is not a simple matter
Municipal Health Bureau staff said, adding the hospital is not a simple matter, you need to have to move, and then, after review by the relevant project, a series of re-approval process, "not talk about that simple."

High risk of infectious disease hospital in Tianjin that no one is willing to do low income
Response to infectious diseases, said hospital director Wei Lu, the new "AIDS" is not a hospital to determine the hospital, and should be unified and coordinated health bureau. The hospital last year, dedicates a building as the HIV specialist clinic. However, there are many fee waiver because of AIDS, HIV specialist clinics has been a loss, but also because of risk, relatively low incomes, health care workers employed less willing to increase the scale of difficulty.

Next, the hospital will be matched two to three full-time doctors, public organizations and HIV interact, understand patient needs. Wei Lu called on the government to increase investment in patient hope to solve the shortage of funds generated by the hospital dilemma.

Newspaper Help

Hai Star infection of the Working Group is the city's first AIDS care organization, a well Tianjin AIDS voluntary nature of the formation of the non-profit non-governmental organizations (NGO). Since its inception in August 2006, the Tianjin area HIV / AIDS infection provides a series of psychological support, peer education and the necessary help and assistance to improve disease control departments in Tianjin follow-up rate, in reducing the spread of the work of the second generation has played an active effect. Currently, the organization has HIV / AIDS infected and more than 240 members. 23 time when the first World AIDS Day approaching, the Haihe River Star infected willing to authorize the working group published newspaper contact, that more people with AIDS and HIV free help.

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[ 作者:佚名    转贴自:本站原创    点击数:196    更新时间:2010-11-27    文章录入:nnb ]